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| Ryan with his BFF at Relay for Life |
It is an extremely rare form of pediatric cancer affecting roughly only ten kids each year in the US. I have been writing about our journey on facebook since November 2010 under a group named RYAN's HOPE. I am also in the process of transferring all of the group's facebook posts to his new CaringBridge page.
Anyone who wishes to follow may visit the Caring Bridge page here:
www.caringbridge.org/visit/ryanshope
Or you may join the facebook group here:
https://www.facebook.com/groups/RyansHope
If you'd like to learn more about this disease, please visit this website:
http://www.ppbregistry.org
